MOTOR NEURONE DISEASE fast progressive and terminal neurological disease - NO TREATMENT! NO CURE!
A WORLD FREE OF MND! MND is a fast, progressive, unpredictable neurological disease - many people die within 14 months. They can become completely paralysed, unable to talk, to swallow and finally to breath. The MND Association ( MNDA ) raise money to assist people with MND their carers and families. We work to raise the profile of MND in the wider community and influence the government. We raise money to fund research - to find out why people get MND, a cure and treatment.
Why the community needs usThe rapid progression and unpredictabilty of the symptoms of MND means that people with MND need help TODAY. We are often able to release funds quickly to assist people and provide care or equipment that the NHS or social care services find challenging to meet in a timely and equitable way. We also have visitors who are volunteers, to support poeople with MND their carers and families. We hold support meetings for carers and ex carers and also other meetings which people with MND can attend.
Our impact on the communityWe try to improve life for people with MND today by acting with compassion support and information. We help fund equipment which is very expensive. IPads for communication when someone cannot speak. Stairlifts/lifts which go through the ceiling. We are at the end of the phone to help & if we cannot do so we can contact MND Connect at the MNDA. We have developed contacts within the local NHS/ healthcare community and often work with them to help or solve a problem cutting down beaurocracy.
We would like to have more volunteers/committee members. They do not have to have particular skills - just commitment, enthusiasm and a little time to help us raise awareness of this awful disease and to fundraise.
