We planned a project which focuses completely on the needs of the carers. Initially we want to talk to them and assess their individual needs. Secondly we would prepare a plan for each of them, outlining what services would help them to achieve their own personal goals. This would include services provided by other organisations and agencies which are not meeting their needs, or have not been accessed by the carers for whatever reason. This could involve lobbying for the rights of carers

People suffering from Sickle Cell Disorder sometimes live alone but at some stage in their lives they will be supported by parents, brother and sisters, husbands and wives or other carers. These carers have a harrowing time, particularly when the client suffers a crisis requiring hospitalisation and many have chronic conditions as a result of their disorder. OSCAR supports clients but has little funding for the needs of the carers - educational, social, financial and moral.

Attention and support could make life much more pleasant, fulfilling and easy for carers, in the aspects of social isolation, fulfilling work, education, financial hardship and general information about Sickle Cell issues. There would also be an emphasis on understanding the hereditary factors, and access to counselling where there are plans to have children. It would also improve life for our clients if their carers were happier and more fulfilled.