Knowing how the founders of CCSHF lost 3 of their children to SADs; a commodity of their EDS, was heart breaking. Losing one child is bad enough let alone 3. However, the strength they have shown to continue with life and build a superb charity to help others is a real inspiration. I also suffer from the same condition EDS, so after several rough years have decided to do a personal challenge in 2020 whilst I’m in a better place physically.
On seeing this challenge advertised thought this would be perfect as it has a personal connection. I know this is going to be very hard, which challenges are supposed to be, I’m also not expecting to run the full distance but will complete doing a mixture of jogging and fast walking, but I will cross the finish line and complete it!
To be able to help raise funds to help others is a great privilege, all donations will be greatly appreciated. Thank you.
